Round 2 - 17 days in.

Hey all it Krysten,

So last night after 6 attempts they placed an IV in my neck. Turns out I have a blood clot in my left arm. Looks like Im gonna be on blood thinners for about 3 months but I will be switching over to oral medications after a while. Tomorrow I have my swallow study so please pray that I can pass it, this way I can eat and drink what I want.

Love you all, thank you for all the support and prayers.

A new journey

Hey everyone. 

On Thursday around 2 pm krysten was taken by ambulance to Baltimore Washington medical center for a seizure. Before this she had been complaining of headaches and stomach aches. When she got to the ER they did a CT scan of her abdomen and head when they presented us with what they found it was completely out of left field. Having nothing to do with her CF the test showed a bleed in her brain 1.2x1.8cm in size. They almost immediately put her on a respirator and we had her transferred to Johns Hopkins hospital. After some test that nightly appeared that the bleed was not growing. The next morning she was doing better, answering questions and fallowing commands. They took her off the respirator that morning around 11 am. By about 4pm her condition had slowly deteriorated. They put her back on the respirator and took her for a cerebral angiogram. This checks blood vessels in the brain to make sure they are all functioning well, They found nothing. Now at this time Krysten is still on the respirator, and doctors are doing a EEG. I hope to meet with the doctors soon to find out what the next step is to getting my wife home. I will try to keep this updated as much as possible. Please keep Krysten in your prayers. She is a strong women and I know she can pull through. She knows through her Faith in GOD that He can heal her. It's up to us to ask and praise Him  for all of the blessing in Jesus Name! 

We love you all! 

Patrick 

Day 41 at Hopkins, Praise God

Day 41 at johns Hopkins and God continues to show His amazing glory. After everything Krysten has been through here the doctor told us today they are shooting for Tuesday to discharge her.  Slowly they are knocking off the oxygen, and antibiotics. She is walking a lot more, 10 laps today as well as steps. She says tomorrow it will be 11 laps. She gets stronger every day and gets much more active. i know she can’t wait to get home and see everyone. We plan to celebrate her birthday Saturday, and attend the CF walk on Sunday. We continue to praise God for the blessing we have received in all of this. We have grown stronger in our relationship, friends, family, and most important God. Please continue to pray for Krysten as she gets stronger, gains her weight back, and tackles the road to recovery.  In Jesus Name!

We love you all,

Patrick

One more day of healing in JESUS name!

Good evening everyone. It’s Krysten, attempting to get back some of her typing skills.

Today was an amazing day, Praise God. I walked 1250+ steps. Woohoo! And my legs don’t feel quite as much like jello when I stand up either. I got to go on 2 wheelchair rides as well; both were located at the cafeteria to break out some pickles from Subway. :P

I, also, had my picc line placed today. One huge step closer to the door. The doctors have high hopes that maybe in a week I could get out of here. Trust me loves I’m doing everything I can to make this possible. I have my swallow test tomorrow which please pray for….I wanna be able to eat regular food!

 

Patrick is still taking great care of me. He is the best husband a girl could ask for. And as soon as we are out of this storm I can’t wait to call him my own. I love him so much. & I love you all, thank you for your prayers. <3

 

P.S. Thank you for the amazing support of the CF walk. I’m blown away by the amount of donations, Praise God for you all!

 

I love you all,'

Krysten

 

Faith as small as a mustard seed!

Hey everyone,

Its day 27, and we have been convicted with a wonderful blessing in our dear nurse Yelena, She is a blessing as she prayed with us for a full recovery, nausea and slumber in JESUS name. I walked yesterday 180 feet, took a shower and started to get my apatite back. Today, I walked 270 feet with a lot more balance. They put me in for a transfer out of the MICU as soon as a bed in available. Praise GOD for positive steps forward and recovery. The doctor said today in maybe a week I can be discharged so please pray for strength and healing in JESUS name. With faith as small as a mustard seed HE will bring you through, and HE has with HIS amazing Glory. PRAISE GOD!

I love you,

Krysten

HEBREWS 12:12-13

¹² Therefore strengthen the hands which hang down, and the feeble knees, ¹³ and make straight paths for your feet, so that what is lame may not be dislocated, but rather be healed

Walking With the LORD!

Hey everyone,

Sorry I haven’t updated you in a couple days, it has been busy around here. Krysten is doing great today I went to bed at around 4am ad woke up around 7 to her saying ‘’ baby can we play a game” while sitting up and looking at me. I was so excited to see her awake and ready to go. As I said before the past couple days have been really busy, Krysten walked for the first time yesterday, and said this morning she was ready to walk again. She is also getting her appetite back thank the LORD! However she can’t eat anything solid so I know she does not like that. Today is going to bring great things. I know she is going to do great walking and will slowly gain strength.

LORD I thank you and praise you for YOUR glory over Krysten. YOUR Healing and patience FATHER YOU are amazing. I pray that YOU continue to bless us In the name of JESUS! I thank you for our family and friends. For working thru us for YOUR glory In JESUS Name AMEN!

We Love you all

Patrick

Isaiah 40:31(NKJV)

But those who wait on the Lord
Shall renew their strength;
They shall mount up with wings like eagles,
They shall run and not be weary,
They shall walk and not faint

Krysten First Post!

 

Hey everyone its Krysten this time.

I had all my tubes removed today Praise GOD! And it has been a very long day, but I’m a fighter only by the grace of God J I was told I can eat today, but I haven’t eaten in almost two weeks so I can’t keep anything down. Please pray for my ability to swallow and keep food down. The doctors put me on a regular nasal cannula for breathing. I also stood up today, and Lord willing will be able to start walking a little tomorrow. I am very tired and restless so please pray for rest also. Thanks for all the love and support I hope to talk to everyone soon.

 

I love you all,

Krysten

Praise GOD for Healing!

Day 22 here at Johns Hopkins, and things are going great. Krysten is breathing very well, and should be on minimum to no oxygen by tomorrow. Her respiratory rate is around 30 tonight, So LORD willing by morning should be down in the twenty’s. The surgeon told me earlier today they would take her chest tube out tomorrow. Then, she should be on her way out of the MICU. Also, speech therapy evaluated Krysten today, she is able to eat ice chips and drink teaspoons of water. Tomorrow should bring a better diet. Today has been a great day, and I can’t wait to see wait to see what the LORD has for tomorrow. I also wanted to thank everyone who donated to Krysten’s Great Strides walk to help support the cure for Cystic Fibrosis. She is going to be blown away by all of the love and support she is getting. If anyone would like to help support the cure, and Krysten this is the link to her donation page. http://www.cff.org/great_strides/KrystenHanneken/

We continue to praise GOD for our journey and the support we have had through all of this. Krysten and I cant wait to be able to share this with as many people as possible, we know that with HIS strength anything is possible. We will continue to Praise HIM for every step we have taken.

 We love you all!

Patrick

3 Weeks in! Lets Keep Praising GOD!

Hey everyone,

Today was a blessed day, as they all have been. Today Krysten got her breathing tube out for the second time! Thank the LORD! She is breathing heavy and has an oxygen mask, but I pray that tomorrow that will be all cleared up. Her respiratory rate needs to be in the mid-20s to get rid of this mask, and switch to a nasal cannula. Her RR is now floating around in the low 40s. The doctor told me today that she was going to see about starting the process of taking the chest tub out, it’s about a 24 hour process. Also, the dystonic reaction is almost cleared up and should be gone soon. Krysten has been so strong through all of this. She has been through so much in these past three weeks, and just keeps praising GOD. Her strength and faith in GOD has been such an inspiration and a testimony to me. I pray in Jesus name that this is our last week here, and she can come home soon.

LORD JESUS i lift Krysten up to YOU to receive YOUR healing. That she could control her breathing and fight the good fight Father that YOU would restore her to how YOU want her and let her share YOUR glory to everyone she meets. In JESUS name AMEN!

We love you all!

Patrick

 

 

Psalm 148 (NKJV)

Praise the Lord from the heavens;
Praise Him in the heights!
² Praise Him, all His angels;
Praise Him, all His hosts!
³ Praise Him, sun and moon;
Praise Him, all you stars of light!
⁴ Praise Him, you heavens of heavens,
And you waters above the heavens!

⁵ Let them praise the name of the Lord,
For He commanded and they were created.
⁶ He also established them forever and ever;
He made a decree which shall not pass away.

⁷ Praise the Lord from the earth,
You great sea creatures and all the depths;
⁸ Fire and hail, snow and clouds;
Stormy wind, fulfilling His word;
⁹ Mountains and all hills;
Fruitful trees and all cedars;
¹⁰ Beasts and all cattle;
Creeping things and flying fowl;
¹¹ Kings of the earth and all peoples;
Princes and all judges of the earth;
¹² Both young men and maidens;
Old men and children.

¹³ Let them praise the name of the Lord,
For His name alone is exalted;
His glory is above the earth and heaven.
¹⁴ And He has exalted the horn of His people,
The praise of all His saints—
Of the children of Israel,
A people near to Him.

Praise the Lord!

we love HIS glory!

Hey everyone,

Krysten is doing much better, she is starting to come out of her dystonic reaction from yesterday. Her white blood cell count is back to normal and the pneumonia is down to a small infection. Praise GOD! I'm praying that in the morning the breathing tube will come out and they can work on getting the chest tube out as well. It is going to be a long road to recovery for us, but with the support system we have it will be a breeze. I praise GOD for HIS healing in her. FATHER YOU are are amazing. i pray in JESUS name over my baby tonight that she can rest well in YOU. LORD raise her up tomorrow! A full recover in JESUS name. AMEN!
We love you all!
Blessings in Christ

2 Timothy 4:2 (NKJV)

² Preach the word! Be ready in season and out of season. Convince, rebuke, exhort, with all longsuffering and teaching.


p.s. sorry for the short update I'm tired.

Day 19 at johns hopkins - Great Strides Walk for the Cure

Hey everyone,

Please continue to pray for my fiancé Krysten Hanneken. She is still having some complications with her CF. Doctors say as soon as she is able to communicate better, her breathing tube with come out. Praise GOD for her healing! I pray she can get better soon, and come home. On May 19th, one day after her 23rd birthday, is her second Great Strides Walk for Cystic Fibrosis. Krysten as well her nephew Carter has a team called Mountain Movers and will be there with the whole family and lots of friends to help make CF stand for Cure Found. If you would like to make a donation in her name for walk please visit http://www.cff.org/great_strides/KrystenHanneken/ . I would love for her get out of the hospital and be blown away by support. Originally we had plans of fundraising, and still do. It just depends on how fast her recovery is. So let’s all pray for a quick and speedy recovery, with many blessings in the name of JESUS!

Day 17 - Healing in the name of JESUS

Hello all,

Praise GOD, HE is so amazing ,I just talked talked to the doctor about Krysten. If all goes well, and HE allows it the breathing tube will come out tomorrow! I pray in the name of JESUS that she might be home next week. Day to day she gets better, and i cant wait to hear her voice again. I look forward to taking her home, and just loving her. After 17 days in the hospital i learned so much about my walk with GOD, and my relationship with both Krysten and my family. I have learned a lot about what it means to make a commitment to someone and stand by them in the hardest times.

Please Continue to lift Krysten up in the name of JESUS for complete healing.

We love you all,
Patrick

Psalm 71 (NKJV)

God the Rock of Salvation

71 In You, O Lord, I put my trust;
Let me never be put to shame.
² Deliver me in Your righteousness, and cause me to escape;
Incline Your ear to me, and save me.
³ Be my strong refuge,
To which I may resort continually;
You have given the commandment to save me,
For You are my rock and my fortress.

⁴ Deliver me, O my God, out of the hand of the wicked,
Out of the hand of the unrighteous and cruel man.
⁵ For You are my hope, O Lord GOD;
You are my trust from my youth.
⁶ By You I have been upheld from birth;
You are He who took me out of my mother’s womb.
My praise shall be continually of You.

⁷ I have become as a wonder to many,
But You are my strong refuge.
⁸ Let my mouth be filled with Your praise
And with Your glory all the day.

⁹ Do not cast me off in the time of old age;
Do not forsake me when my strength fails.
¹⁰ For my enemies speak against me;
And those who lie in wait for my life take counsel together,
¹¹ Saying, “God has forsaken him;
Pursue and take him, for there is none to deliver him.”

¹² O God, do not be far from me;
O my God, make haste to help me!
¹³ Let them be confounded and consumed
Who are adversaries of my life;
Let them be covered with reproach and dishonor
Who seek my hurt.

¹⁴ But I will hope continually,
And will praise You yet more and more.
¹⁵ My mouth shall tell of Your righteousness
And Your salvation all the day,
For I do not know their limits.
¹⁶ I will go in the strength of the Lord GOD;
I will make mention of Your righteousness, of Yours only.

¹⁷ O God, You have taught me from my youth;
And to this day I declare Your wondrous works.
¹⁸ Now also when I am old and grayheaded,
O God, do not forsake me,
Until I declare Your strength to this generation,
Your power to everyone who is to come.

¹⁹ Also Your righteousness, O God, is very high,
You who have done great things;
O God, who is like You?
²⁰ You, who have shown me great and severe troubles,
Shall revive me again,
And bring me up again from the depths of the earth.
²¹ You shall increase my greatness,
And comfort me on every side.

²² Also with the lute I will praise You—
And Your faithfulness, O my God!
To You I will sing with the harp,
O Holy One of Israel.
²³ My lips shall greatly rejoice when I sing to You,
And my soul, which You have redeemed.
²⁴ My tongue also shall talk of Your righteousness all the day long;
For they are confounded,
For they are brought to shame
Who seek my hurt.

Day 16 at Johns Hopkins

Hello all,

Praise GOD! I just talked to Krysten’s nurse, her white blood cell count is down to 15000 (great news).  Her fever is staying down and she is resting a lot. All great signs of her getting better, I can’t wait to get her back home. When Krysten does get home we need to get her back in shape for the Great Strides –CF walk in honor of Debra Klipsch, on May 19^th by the grace of GOD Krysten and I will be attending along with our family to support find a cure for CF.

I pray that in a couple days Krysten will be able to update everyone herself.

FATHER i lift Krysten up to you and ask that YOUR will be done. That YOU continue to heal her in the name of JESUS. FATHER continue to comfort her, i pray that she be still, knowing that you are GOD. Faithful to YOU and ready to speak YOUR glory of her healing, When YOU release her from this place. I pray in JESUS name AMEN!

 

We Love you all,

Patrick

Round 1 - 4/15/13

Hey everyone, its Patrick.

On Easter day, my fiance Krysten Started to cough up blood due to complications of her Cystic Fibrosis. We brought her to Johns Hopkins Hospital here in Baltimore. after being admitted, and treatment started, she began to get better. On the day she was supposed to be released the blood started again, but worse.  She was taken in for a embolization and brought into the MICU. The doctors said the embolization was successful. The next day it happened again. she was sent in for her second embolization, but this one was not successful. They started her on a medication to try to take care of the problem, but it did not work. with these kind of results krysten had about an 80 to 90 percent chance of bleeding again. So with hardly any options left the doctors presented surgery to the table. So the next day they preformed a Lobectomy. The surgery went successful. Then, after a couple days things got better, and they took the ventilator out. After that, she took a turn for the worse and her pneumonia flared up. Her breathing got worse, and they had to put the ventilator back in. By Gods grace she is getting better and will hopefully be home soon.

That is the previous days in a nut shell.


I just talked to krystens CF team here at johns Hopkins. They say her antibiotics are being doubled, and will hopefully fight the pneumonia a lot better. We should know in a couple of days. Krysten is still on the ventilator, and very sleepy. She is doing good with all of her physical therapy and treatments, Praise GOD!  Her body is slowly recovering from the infections and staying stable. This is day 15 of her being in the hospital, and i pray that her faith is growing day by day as mine is. she is truly an amazing testimony to HIS amazing glory. I cant wait to hear her side of all this. It has been a very long 15 days, it has tested my faith, beaten me down, but HE brought me right back up. I hope i can update this day by day for everyone but in this place who knows. Thank you everyone for you support, love, and most importantly prayers.

LORD we thank you, for blessing Krysten and I with amazing family and friends. GOD i pray that everyone can see YOUR glory in this, and look to YOU. Father YOU are amazing. we thank YOU for the healing that has taken place in Krysten and i pray that YOU, the great physician will continue to heal her lungs. i pray in JESUS name AMEN!



We love you all!
Patrick